Great yet terrible day!

This past week was crazy. This past weekend was lazy. Today, I am having a hard time justifying!

Ry Ry had an appt with Dr. Julie and NP Diane. Dr. Julie gave the great, fabulous, awesome news that we can discontinue the apnea monitor. That means that she is completely of everything! EVERYTHING!! 6 months old and we finally have a "normal" baby. Normal in the sense that she isn't connected to any machines or tubes. It's absolutely, positively AWESOME!!

Ry Ry is developmentally at 3 to 4 month age...so pretty much spot on! Physically is a completely different story. Normally at 3-4 months of age a baby is rolling over and holding their head up and quite possibly sitting without support. Rylee can smile and look/talk to her hands and rubs her head sideways. Her neck and trunk muscles are lacking. Her head is still very wobbly. She can't roll over by any means. Sitting up on her own is not even being thought of at this point in time.

A couple of weeks ago we met with a woman named Tammy. She runs our county's Birth to 3 program. Dr. Julie and NP Diane are thrilled that there is such a program around us and are extremely happy they will be coming. NP Diane s going to call Tammy and talk with extensively about Rylee and get her up to date on her past and medical needs. We are meeting with Tammy and a couple of therapists later next week. So we are on the fast track to helping RyRy catch up with her actual age, though it's still quite a ways off!

That was the great news. The terrible news is that a family very near and very dear to me needs prayers! My sister, her husband and their 2 children had a fire start in their garage this morning. The fire spread through the breezeway to a gameroom (a 2+ car converted garage) to the attic above the gameroom. The damage throughout their home, garage, breezeway and gameroom are absolutely undescribable. 4 fire departments were there. Thankfully the neighbor was out and called 911. Local cops kicked in the door and were able to save their 2 dogs. However, their cat, Zoe, who was inside the house passed away in the comfort of my nephew's room.

My brother-in-law lost his truck, his Jeep, the family ATVs and another car(I don't know how to spell the name of it). But mostly, he lost his beloved Barracuda, a vehicle he inherited, I believe, from his aunt who passed away a few years ago. The curtains over the patio door in the kitchen were melted as well as screens on doors, the gameroom floor, everything in the garage, the siding on the neighbors house...this list goes on. This family has lost everything in this awful fire. Things like curtains, garages, siding, ATVs can be replaced. But things like Joe's Barracuda and the family cat, Zoe can't be.

So please pray for this family in their time of need. Pray hard because they deserve better than this. They don't deserve to shed those tears and feel this pain. Zoe didn't deserve to die a horrid death. My sister and her husband didn't deserve the calls at work and lose their worldly possessions. My niece and nephew didn't deserve this. This is a family who didn't deserve this. I am again unsure of why God does what he does sometimes. I just don't understand.

I did take photos while I was there today but at the privacy of my sister and her family, I am not posting them. I know you understand.

So again please pray for my sister's family tonight.