Wednesday, September 8, 2010

The last 43 days!

The last 43 days has been crazy! Here's a quick recap (more for my note taking than anything)

Day 1, 7/28/10 Became an aunt again to Sawyer James in the wee hours of the morning.  Mid afternoon got a call from the GI doctor with suspicions that Rylee's shunt isn't working.  4:55 pm, ran my rear end off to get Rylee into the clinic to get her head measured.
Day 2, 7/29/10 UW Pediatric Neurosurgery called and wanted Rylee there ASAP for a quick brain scan to check her shunt.  2:00 pm brain scan, 2:30 pm looked at the scan with Dr. A and found that her shunt was indeed not working, 4:00 pm finally heading back to SW WI, 11:30 pm, got all the running around done and home only to find out we have to be at the hospital by 6 am the next morning...ouch!
Day 3, 7/30/10 Shunt revision surgery to replace the valve at 7:45 am.  Problems with anesthesia and waking from surgery got to see her at noon wake up with a smile on her face!
Day 4, 7/31/10 Rylee slept the entire night, was happy as a clam, and by 11:30 am we were loaded in the car and headed back to SW WI to get Troy and go home.
Day 5, 8/1/10 Rylee was doing better than expected so as a last minute decision decided to visit our new nephew Sawyer.  We packed up Troy, Rylee and ourselves for the 2 and half hour drive to Tomah.  At 4:30 pm, an almost accident which included a big slam of the brakes, brought on some contractions.  By 6 pm, Mommy wasn't feeling very well.  By 10 pm, Mom felt alright and slept fairly well through the night.  Rylee vomited at our visit and at home in the evening with a slight fever, decided to take a visit to the doctor the next morning.
Day 6, 8/2/10 7:30 am, after a quick shower to help relax from all the contractions, Mommy went to work.  At 9:20 am, Visited Dr. Rose, 10:00 am went to hospital for blood draw, mommy wasn't feels so well, 1:00 pm Mommy decided to time the contractions, 2:45 Mommy got in the car to go to 34 week OB appointment, 3:20 pm arrived at the clinic with painful contractions, 4:00 pm doctor finally came in to see Mommy, 4:20 pm being loaded on a stretcher and into an ambulance, 4:30 pm arrived at hospital, 4:35 pm seen Dr. Berger, 5:00 pm got epidural 5:30 pm Dr. B broke water, 7:00 pm started pitocin, 9:45 pm broke down the room for delivery, 9:52 pm started pushing, 9:57 pm Weston Robert Klauer came into this world and was sent to the NICU
Day 7 8/3/10 Spent at the hospital NICU and recovering.  Weston doing well except for grunting while breathing.
Day 8 8/4/10 Mommy released from the hospital.
Day 9 thru Day 24 8/5/10 to 8/20/10 Divided time between home and the NICU with Weston.  8/15/10 (Day 19) Become an aunt AGAIN to Lily Evelyn.  8/19/10 (Day 23) Took Rylee to her 18 month well child appointment.  She was 28.5 inches long and 15 lbs, 8 oz.
Day 25 8/21/10 Brought Weston home after 19 days!
Day 26 thru Day 29 8/22/10 to 8/25/10 Hung out around home, enjoying visitors! 
Day 30 8/26/10 Noticed Rylee's incision was broke open and could see something black.  Called the Doctor and made an appointment for the following day
Day 31 8/27/10 2:30 pm met Dr Alison who all but freaked out about the incision.  She called UW peds neurosurgery about this and made us an appt for Monday.  She removed Rylee's stitches that didn't dissolve like they were suppose to and instructed us to go to the UW ER if it opened again before our appointment and ordered some antibiotics.
Day 32 8/28/10 Rylee broke her incision open at 2 pm which started bleeding.  At 5 pm did it again but this time was accompanied by crying and a temp.  7 pm arrived at UW ER, 10 pm new antibiotics and homebound
Day 33 8/29/10 Spent the day at home with some visitors and got ready for our 3 appointments on Monday
Day 34 8/30/10 8:55 am met with GI doctor, 9:20 met Dr Bragg, Rylee's new neurosurgeon, who said the black thing we seen was a stitch holding the shunt together, pretty much exposed as well as the shunt.  Tapped the shunt and took some blood to test for infection at which she thought was probably neg.  Scheduled shunt revision surgery for 7:45 the following morning.
Day 35 8/31/10 8:05 am took Rylee back for surgery, 10:00 am Dr Bragg came in say that just as she was finishing up the revision surgery, the lab called saying the cultures were positive so taken the entire shunt out.  11 am, surgery was done and they just needed to place a picc line. 12:45 pm Got taken back to recovery to see her
Day 36 9/1/10 Happy Birthday Daddy!  First night in the PICU was uneventful. 
Day 37 thru 41 9/2/10 to 9/6/10 Kris and I split out time between home and the PICU. 
Day 42 9/7/10 Surgery was at 11:30 am to place the shunt back in.  Dr Bragg switched the side of the shunt to her left.  She had to tunnel a new catheter from her brain to her belly and had a hard time routing it down around her neck area because she's so thin.  Rylee has orange hair with none on top.
Day 43 9/8/10 Today we are hoping to go home.  Rylee has to have a quick brain scan, which isn't schedule so we're at their will for times, and then hopefully can go home. 

Thank you all that called, text us and sent us prayers yesterday.  It meant a lot and we appreciate more than you know.  It's funny how something so tramatic happens like this, you really find out who cares and who doesn't.  Some come to visit, while others can't even pick up the a couple seconds to call.  True colors were shown yesterday and it was my feelings that were hurt.  Not much I can do about it now but move on!  Keep your fingers crossed that we can come home today.  Everyone needs it, especially our dogs and house!

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