Thursday, July 29, 2010

Please pray for Rylee

Rylee's GI doc called us on monday.  We played phone tag until Wednesday afternoon.  Her thought was that they didn't check Rylee's head circum. when we were there on Monday and wanted it to be measured.  She and Shirley were looking at measurements in the past couple months and noticed a large increase in size.  I rushed Rylee into Dr. C's office, he measured her himself and faxed her neurosurgeon the measurements.  Today, neurosurgery called and wanted to see her right away.  We took her to the UW hospital's Radiology department first for a quick brain scan the over to the AFCH Peds Specialty clinics to see Dr. A, her neurosurgeon.  He hadn't seen the images yet and pulled them up while in the room with us.  It was abundantly clear that from April to today there was much more fluid.  Her shunt is no longer working.  They told us when they placed it in September that there was a chance this would happen.  We decided to come home for the night since surgery is for tomorrow.  I had some work to finish up at work, we needed to do something with Troy and pack for ourselves.  My in-laws are off tomorrow which worked out really well and said they would take Troy.  So while I was at work, Kris took Rylee (Troy came with me) to the store to pick up a few things for Troy's stay at Grandma and Grandpa's house.  We then ate supper and headed right up to Cassville to drop Troy off.  We stayed up there until after 10 in hopes that he would get tired and we could help put him to sleep.  No such luck!  We just got home 11:42 pm and had 3 new messages from the AFCH on the answering machine.  We told them to call my cell number not home so we missed every call.  Thankfully the 3rd message was full of all the info we need for tomorrow.  When we left the clinic today we didn't know when surgery would be, praying for early in the morning to avoid an overly hungry little girl.  Thankfully, surgery is at 7:45 am, we need to be there at 6:15 am.  It's going to be a late bedtime, early rise and LONG day!  Hopefully, everything goes as planned today.  Since it is so early hopefully there are no 3-4 hour delays like when the shunt was placed.  She will be admitted and spend the night there tomorrow night, along with Kris or I or both!  Please pray they find the area of the shunt that isn't working and it's an easy fix.  Pray for only a little shaving of her hair and not her entire right side!  I am extremely thankful that we caught this now, getting it fixed and after an extremely stressful few days, week rather, I am still pregnant!  Speaking of pregnant, I am aunt again to a beautiful little boy.  He made his timely entrance early yesterday.  I can't wait to meet him!  Welcome to world, Sawyer.

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