Busy Days!

Life at the Klauer household has been truckin' along.  We've been in our rhythm.  So here's an update of each of us...

Kristopher:
Pretty much the same old same old.  He is recovering from Strep that I gave to him and then he gave back to me.  At least we share well!

ME ME MEEEEEE...
There isn't really anything new about me.  I had a birthday on the 19th.  It was nice, except the strep throat part, and I enjoyed turning 26.  It was easy.  Kristopher and I took Rylee and Troy to spend the night with Grandma and Grandpa Klauer.  They had a great time and both were crashed within minutes of leaving.  Kristopher, Weston and I went to the Melting Pot for what Kristopher calls "Linner" because it was 3:30 in the afternoon, too late for lunch, too early for dinner so Linner. Then we went to an Imax movie, which I have never experienced.  We saw I am Number 4.  Let me tell you on tidbit of info about me, I am not a scary movie person. I had seen a trailer for the movie but didnt think it would be "scary" but I was startled twice thoughout that movie.  PG13 my big ol' hiney!  I enjoyed the storyline of the movie but I think I will just read the book instead!  Or watch the next movie, I am pretty sure will be a series of movies since there is a series of books, at home with all the lights on! haha!

Weston:
On Feb. 10 we took Wes to his 6 month well child checkup.  He's in the 25% for height and weight and 50% for his head circumference.  He looks like, and I say this because I absolutely love him, the marshmallow man! He's a little rolly polly but technically underweight!  Dr. C says if he wakes at night  and wants to eat, feed him, he's a growing boy!!  He's a rolling fool. He's getting ready to sit.  He can sit for a little while then falls over.  He's not so keen on cereal or oatmeal and not much for baby food!  He did however eat a small jar of bananas tonight.  I love this little boy so much! 

Troy: 

On Feb 10, Troy also had his well child visit just his 3 year, no shots at that one.  Dr. C said this is a shocker but he has been consistently 90% for his weight his entire life!  He is at the 50% for his height.  He's not fat by any means just a muscular little boy.  He hefts his brother and sister around where ever he wants them to be, against the likings of mom and dad!  We were concerned about his eyes.  They seemed a little off.  Dr. C also thought so so he suggested and recommended seeing an eye doctor for the possibility of glasses.  So on Feb 17, he met Dr. Scott and we learned that he has misaligned eyes and is farsighted.  So he has new spectacles.  Since turning 3 almost 2 months ago, he has grown up before our eyes.  Literally overnight, he was potty trained both night and day.  Then on Tuesday when I put his glasses on him, I lost my baby.  He says the funniest things and most serious things.  Just tonight he was in the bathroom going potty and I went in to check on him, he looked at me and said "excuse me, close the door now mom, don't be looking at my boy parts!"  He told me I guess.  I don't think that we have to worry about him running around naked. 

Rylee:
I saved her for last for a reason.  Because she is the most difficult and has the largest update, I am sure.  On Feb 10 she joined her brothers at Dr. C office for her 2 year well child check up.  She was a sick little girl.  Earlier in the day we had been at the doctor in Madison and she was fine.  Then 3 hours later, she had a 102°F.  Weird.  Turns out she had a bad double ear infection so Dr. C prescribed her the famous Omnicef.  3 days later, as we getting ready for church we found the hives.  As it turns out, Dr. C has switched churches and is now a member of the same one we belong to so we jumped him after church and he ordered her a new antibiotic.  Worked like a charm.  By the following Wednesday, you could barely see the hives and she "talked" to Dr. C for the first time and of course gave him her famous smile that melts his heart so.  As for trips to Madison, there have been many.  On Jan 19, Rylee had a repeat swallow study.  Turns out she has some penetration when drinking from a sippy cup so no more sippy cup, only cups with straws and a limit of 5 swallows.  And she needs to be taking smaller bites.  On Jan 27, her and I met a urologist, Dr. Kryger, who wanted to do an ultrasound on her kidneys and potentially a MRI of her spine.  She also had an echocardiogram that day and met the cardiology doctor, Dr. Hokenson, afterwards.  Her heart still has a hole in it which apparently is relatively common and she has regurgitation.  Dr. Hokenson said that on a broad spectrum of kids, he wouldn't need to see her again however, considering Rylee's medical history and lack of definitive diagnosis, he wants to see her at age 5.  That's great!  On Feb 10, we made the trek up to Madison in the morning before all the well child visits, to have the ultrasound of her kidneys done.  Her kidneys are a high normal size for her age however, she is not a normal size for her age.  Everything with her kidneys are fine.  There is no reflux or anything which is great.  Dr. Kryger ordered her to have a MRI of her spine and that will be March 18th.  I am crazy nerves for this.  She has to be put under for it and it will take 3 hours.  CRAZY!     She has a couple of appointments on March 1st.  One with her GI doctor who called me on Feb 1st.  She had seen Rylee's weight from the Jan 27 appts and was quite concerned.  I am certain that on at this appointment we will be faced to make the decision of the feeding tube.  Dr. Cathy thinks that it is time or at least that is what I gathered when I spoke to her Feb 1.  On March 1 she also meets with a Pulmonary doctor, Dr. Sanders, at least that's who I think we are suppose to see Dr. C can't find that doctor and has been trying to get ahold of him. Dr. C, Kris and I spoke about Rylee's breathing when she is sleeping.  She tends to retract and on average 3-5 times a night just quite breathing all together so we hear her constantly take a great big deep breath.  So Dr. C wanted to talk to Dr. Sanders about this issue before we came up (the cardiac doctor referred us to Dr. Sanders) so he will be well aware of what he is up against when we get there and possibly start her on CPAP before this appointment.  So far, I haven't heard anything from Dr. C so I guess we'll wait until the appointment on the 1st.  March 1st may bring new tubes to Rylee.  I am quite nerves about this appointment.  Rather sick to my stomach, sit and cry nerves. I fear for her.  I know her weight isn't going to be great, she hasn't been eating well and is definitely not sleeping very well.  Sleeping has been quite the issue the last few nights.  The last 3 nights, I think she has average about 18 waking times each night.  It's been ridiculous.  It also doesn't help that I have been having awful migraines and she has made me want to slam my head through a brick wall.  Kris and I are at our wits end.  Kristopher hasn't even slept in our bed for 2 nights because he has been sleeping out in the chair in the living room with her.  Between her and Weston, we don't get much rest! 

As you can tell, our lives are busy.  We have a little man who keeps us entertained with his quirky little stories and statements, a baby boy that we are trying to push along to crawl and laugh and a Princess that we are pushing and praying will walk some day soon.  I promise new picture soon!    

Birthday party count down!

Our nephew Noah turned 3 on Saturday and had a bowling birthday party.  His party was at a bowling alley in Fitchburg so me, Kris, Troy and Weston made the trek.  Rylee can not go into crowds due to those bad germs that everyone carries so she got to spend sometime with Grandpa Harley and Grandma Deb.  This birthday party was Troy's first time bowling.  He had a lot of fun.  The hardest parts for him were watching Noah open all his Thomas the train gifts and leaving.  Leaving somewhere is always hard for us.  Troy never wants to leave, doesn't matter where we are.  Apparently at the Klauer Christmas, Kristopher had to deal with a HUGE temper tantrum from Troy when it was time to leave.  He was NOT happy to go, I guess.  Anyway, Troy kept asking why it wasn't his birthday party, where was his birthday party....it's THIS Saturday.  I am excited.  We are going to have fun.  We're going to have cake (Troy has requested cars on his cake), food and games.  This party is for Troy and Rylee and Weston!  Troy's 3rd birthday, Rylee's 2nd and Weston's Baptism.  Weston's godparents are Kristopher's brother Nicholas and one of my best friends, Andrea.  We decided to adopt a Marine unit in Nicholas' honor because Nick is a Marine and has spent time away from home.  So we adopted a unit of 20 men who miss home.  They want and need essentials and things to keep them entertained.  We enlisted the help of our guests in bringing a thing or two to send to these guys.  I am excited to see what we collect for them.  I just got all the plates, silverware, napkins, streamers, etc. essentials for a party.  Our party is a little different than most in that it will be equipped with antibacterial wipes and hand sanitizer.  We have to keep our babes healthy, which has been a struggle thus far.  We are tired of sucking out boogie plugs and dealing with bloody noses.  We started off the year by having 2 doctors appointments.  In 2010, we drove over 7500 miles back and forth to the 109 doctor appointments.  On average, the doctor appointments cost $130-$140 each, so we cost about $15000 for just doctor appointments which does not include the 3 shunt surgeries, 6 MRIs, 8 days in the PICU, 19 days in the NICU, ambulance ride, delivery of a baby!  2010 started off with at the time AWFUL news, I was pregnant for the 6th time in my life, 7 months later, we had Weston and I can't imagine life without those chubby legs and that gorgeous smile!  My maternity leave was the busiest, worst time of my life.  I never wish that on anyone.  I am glad 2010 is over.  Kris and I have been dealt some pretty shitty cards.  I keep thinking that things can't get much worse and sometimes I am surprised when they do.  It's the little things that drive me nuts like a shredded tire or stupid insurance crap.  That is why in 2011, I am going to be a rock.  I am going to be that do it all mom that I need to be and let things roll.  My step brother Rob (who fell 2 stories to the ground while roofing in July 2008, leaving his spinal cord completely severed and now paralyzed from the waist down) has been having some issues lately.  His mom has been worried about him (mainly because he lives 4 hours away and she's not right there to hold his hand and keep an eye on him) and sometimes I think that worrying gets to him a little.  He's extremely strong willed person and he's so lucky to have that support system.  I am trying to accept that I don't have that and I will admit, sometimes it bothers me, sometimes I long for that, sometimes I need to just get it all out.  Don't get me wrong, I have a great family but I sometimes get the feeling that all I do is talk about Rylee's problems and appointments so that's why they never call anymore.  In 2011, I am not going to constantly talk about Rylee's issues and I am going to try my hardest to let go of the longing for that support system that Rob has and I don't and I am going to do it all.  I started this blog to keep my family and friends updated about Rylee after we brought her home.  On January 29th, against many odds, she will be 2.  I was told twice that she was in critical condition and might not make it through the night and I did it alone then.  Today she was running her fingers through my hair, blowing in my face and laughing with me as we jumped around the room.  Therefore, the blog posts, like they have been lately, will probably be few and far between.  I have my best friend and rock, Kristopher.  With him, I'll be fine.  I will do it all, with a smile on my face and hopefully by the end of the year, my mommy of 3 body is fit and toned.  By the end of the year, I will be physically, mentally, financially and emotionally healthier. 

Happy New Years!

I am taking a break from the Rose Bowl, however, due to the noises Kristopher is making, I am pretty sure it's still bad!


Kristopher and I have New Years Resolutions this year.  We are get fit (like everyone else in America!), be better parents and love one another more.  This may sound funny, but we want to run a marathon.  Big goal!  I think if we can run a 5k and live through it, we're doing good!  I want to get fit.  Lose a couple pounds and fine tone this ol' mommy of 3 body of mine.  I want to be a better me.  We got a christmas card during the holiday season from my aunt and uncle who wrote, "you're my guiding light".  I am flattered by that.  I often hear, you're super mom, you're a do it all mom.  I do do it all but in 2011 I am going to do it all with a smile of my face and let those little things roll.  (SIDENOTE:  I just looked over at Rylee, who is all decked out in her Badger cheerleading outfit, who was standing up playing with a toy in the rocking chair!  Scary and awesome at the same time!  And by the way, purple Horned Toads, I mean Frogs, is a stupid mascot! Just sayin'!)

Christmas (GOGOGOGOGO, awww! Sorry, I can't help multitasking!  I am a mom of 3, I can type and watch football at the same time right?!)  was great.  Santa Claus, for unknown reasons, came to our house.  He dropped of a train set for Troy and a kitchen all decked out for Rylee.  Troy got a bike and Rylee got a tricycle.  They are spoiled.  Troy was a turd.  I kept telling him Santa Claus wasn't coming or he was coming back to pick up the toys, didn't faze Troy.   He continued on and on.  By Monday, I was glad I had to go back to work!  What Santa Claus didn't take into consideration when picking out those toys was the mess all those little pieces make.  And what a nuisance it is to constantly put a train back together again.

We're having Weston baptized on January 16th.  Then a big party for him, Rylee's 2nd birthday and Troy's 3rd birthday.  One BIG party!  It should be fun!

Colds are heavily invading our home.  Wes can't seem to shake his.  Rylee has the yuckiest nose ever!  The snow around here, up until Thursday, was absolutely unnecessary!  Needless to say, we are ready for spring!!  Extremely ready for spring.  These kids need to run of their energy.  Hopefully by spring, we have to 4 runners and a roller in this house.

(Oh my, the Badgers are down by 8 with 2:34 left in the game....I have got to go do something else!....oh oh oh...TOUCHDOWN! Oh I can't even handle this! 2 points away...holy moly)

3 years ago...

my life changed forever!  Troy Thomas Klauer entered this world.  Happy 3rd Birthday Troy.  I love you more than you'll ever know.

Oh, what to do...

We took Rylee to her Growth Hormone testing. Her blood pressure dropped to 50s over 20s. That’s the lowest it got, which was low enough! It took about 4 hours. She was pretty much zonked through the entire thing. On Tuesday, after much badgering, I got the test results. She passed. This was a test that we desperately wanted her to fail. I thought, prayed rather, that this Growth Hormone deficiency was going to be it. It was going to be the diagnosis that we had been waiting for. But she passed meaning that’s not it. To say that I was bummed to highest level on Tuesday is an understatement. So it’s back to the drawing board. We had to take Wes to see Dr. Ashley on Wednesday and she pulled Dr. Connolly in to look into his ears. We discussed the results a little while he was in with us. He thinks that she may quite possibly have some form of dwarfism. It could possibly be the Chromosome deletion. It could be a lot of things. So we discuss this more at length on Thursday when we take Wes back again for his 4 month well child appointment. Diane Eastman, Rylee’s nurse practitioner from UIHC, called me yesterday. She desperately wants Rylee in to have her heart and kidneys looked at. I was trying to steer away from Iowa City because of the drive but I guess it’s not much longer than going to Madison from our house. Rylee’s innocent heart murmur may not be so innocent after all. Her enlarged kidneys could be the problem. I hope going down there we can figure out what is causing this “failure to thrive”. She is officially considered a “failure to thrive” child because her growth is less than 2 lbs and 2 inches of growth in 1 year. In the last 12 months, she has only gained 10 oz and grew 1 5/8 inches. I want to discuss the possibility of the Mayo Clinic with Dr. Connolly. I think it is time to quit messing around and just head up there. If he doesn’t think so, I do. And I am mom so I win! I am at my wits end really.  I just don't know what to do anymore.

Runny noses is the race around our house. We can’t get Wes and Rylee’s to quit! Poor Wes had an ear infection in November and again in the beginning of this month. This poor child has been following in his big brother’s footsteps, through and through. He has also developed a wheezy cough that Amoxicillin didn’t kick, neither did Omnicef so he has Prednisone to his regimen. He is taking Omnicef, Prednisone and Albuterol by nebulizer everyday. Hopefully, when we see Dr. Connolly next week, this is all cleared up.

Last Sunday night, Kristopher took Troy to see a Canadian Pacific train come stop in Dubuque. It was all lit up in lights and they had performers and music. He had a blast. The only downsides were that it was late, 9:30 pm, and bitterly cold out. They stayed for about a half hour and then came home. He was so excited to tell me about it. He even talked about it with his babysitter for a couple of days. He knew all the colors of the lights. He’s growing up before our eyes! He says some of the funniest things and we have the most interesting conversations. He’s hugely into trains and dinosaurs.

This weekend is a big one for us. Tomorrow my baby brother graduates from college and is having a little open house at my dad’s afterwards. I am excited to cheer him on. I have to pick his girlfriend up at 1 and we will take our seats (yes, there is assigned seating!). Do you all remember the scrawny little guy? Now he is a bulky, muscular, tall guy. He’s no longer my “little” brother…he’s my little but BIG brother! Congrats Scotty!

Next Monday, we are off to the GI doctor and Thursday to see Dr. Connolly. Eventually we will go a week with out a doctor visit…I hope!

Happy Thanksgiving

Well, it official.  My sisters, sister-in-law and I are NUTS.  Down right crazy.  We braved the crowds and went black friday shopping at WalMart's 12:01 am sale. I got a few things but my favorite is the bicycle for Troy for his birthday.  I am so excited about that!  I do have to say that people are down right crazy.  Oh man.  Erin decided that she would like something to eat and a quick McDonald's drive thru turned into a rediculous 30 minute wait.  Then about half way home, we almost hit a herd of cows, literally by the hair on my chinny chin chin.  I got to bed at 3:30 am and was up at 7, needless to say I am tired.

Thanksgiving is usually a low key holiday for us.  This year, I made the whole dinner and all then later we went over to my dad's and ate some more!  I made a traditional Thanksgiving dinner.  The sage and garlic turkey,sausage stuffing, mashed potatoes, corn, green bean casserole and dinner rolls.  We had pumpkin pie loaded with Cool Whip for dessert.  It was fantastic.  Rylee loved it.  Troy broke out in hives from who knows what (a little benadryl and he was fixed).   We went around the table and said what we were thankful for.  Troy said "peanut butter sandwich", haha, it's been his favorite lately.  This is a photo of my scrumptious turkey.

It's been a while since I posted about what has been happening in our family.  Rylee's big testing is coming up, Tues Nov 30th.  They are testing her for Growth Hormone Deficiency.  We will then discuss why this is, what the treatment is, who we see next...those kinds of questions.  Then Dec 1st, I have been subpoenaed to court.  First time I have ever been to court and I HAVE to be there.  In August 2008, I became a Notary Public.  I am bonded and all.  In October 2009, I had a family come in and I notarized a will.  Now, after a death, there is a controversy over that will and I am the main witness.  That darn Notary.  Since then I have been much more leery of what I am notarizing.  I am nervous as all get out.  I have to make it through Rylee's testing first and pray to the high heavens that nothing goes wrong at that appointment.  That attorney does know that she has this big testing and there is always a possibility of something going wrong, especially with Rylee and her "damaged" organs. 

Lately, I have been crafty.  A while ago, when I started making Halloween costumes, I got fabric to make Christmas stockings for our family.  I finally got them made.  They are so darn cute. I spent $16.95 to make those.  I already had the interfacing so I just had to buy the fabric.  I still have to put our names on them but I think I am just going to get those iron on sheets and print them on. So for about $3.50 each, we each has personalized, custom stockings, can't beat that!

 Troy and Kristopher's stockings

 Rylee and my stockings

 Weston's stocking

Last weekend, I decided to make an apron because I don't have one.  It turned out so cute!  I had so much material left over, that I decided to attempt to make Rylee a dress.  It's a pillowcase dress and it's so cute.  I just love it.  She looks adorable in it though I didn't get any pictures of her wearing it.  It cost me just under $10 for the 2 yards of material and I still have quite a bit left over.  So for $10, I got an apron and an infant sized dress.

2 weeks ago, I spent my sunday at the sewing maching and made 1 panel for the kids bedroom window.  I have 3 more to make for their room and 4 for ours.  I couldn't stomach spending the $10 per yard for the fabric I wanted for the kids room.  I wanted something colorful yet still go with the grayish, silvery paint we got to paint their room.  I found those most adorable fabric for our room and there again I couldn't spend that much money just for curtains.  The designer fabric was 30% off so I got them for about $7 per yard.  So instead of getting the 10 yards that I needed (2.5 yards per window), I got 4 yards of the designer ($7/yard x 4 yards = $28) and 6 yards of muslin ($1.39/yard x6 yards = $8.34 for a total of $36.34 for 8 panels to cover 4 windows...not bad!).  I had a picture in my head of how to would turn out.  It looked awesome.  Now that I have my pattern down from making the first one, I need to get crackin' on the other 7, ugh.  And we need to get those rooms painted.

I also made curtains for my kitchen sink window and a valence for the dining room window to match.  Cute right?  I made both of those for about $7. 

I also made a WI Badger wreath.  The tulle cost me $6, the styrofoam wreath $3 and the "W" for $1 for a total of $10.  I decided that I needed to make a wreath hanger to go with so for $7 I made one.

I also made this twined "K".  The twine was $2 and the letter K was $1 for a total of $3. 

I made these jars.  I spent about $2 per jar, used the same roll of twine from the letter K above, $1 each for the finials, $1 each for the spinals and $.50 for each of round bases for a total of $13.  (I still have to attach the bottoms to the jars but one of the jars are bubbled so I am trying to figure out how I am going to do that.)  I got the rocks from the dollar store so $2 there.

I had so much fun but I think I am taking a break from crafting for a bit.  I need to get our bedrooms painted and curtains made and hung.  I am excited to see the finished project.  It's on my too do BEFORE christmas.  I got the ideas of the twined K, Apothecary jars and wreath hanger from Shanty2Chic.  Right now they have not 1 but 2 giveaways that I am excited about. The first giveaway you'll see is for Gorilla glue.  That stuff is amazing.  They have some great epoxy glue.  The other giveaway, I will extremely heartbroken if I don't win, is for a Silhouette Machine.  Oh my goodness, I want one of those really really really bad.  It would make my crafting so much easier.  You probably ask, why the Silhouette versus a Cricut? Because, you get patterns and such online for $.99 I believe for the Silhouette versus the Cricut cartridges for $60+. 

Here are a few more overdue photos.  My little Weston is not so little anymore.    He is battling a cold right now and just got over a nasty ear infection. 

Our Journey with a Preemie Princess

Last year, I wrote this post for Premature Awareness Month Bloggers Unite event on November 17, 2009.  In the last year, we've been busy.  We successfully made it through RSV, cold and flu season without any major illnesses.  In February 2010, I found out that I was pregnant...again, due September 8, 2010.  This pregnancy was a rough one.  I had major morning sickness, achiness, Braxton Hicks since week 13...I was just miserable the entire time!  In April 2010, Rylee started seeing a GI doctor and nutritionist monthly.  We have tried many different diets and medications.  So far, since February Rylee has gained 1 lb.  In the end of July, Rylee started vomiting again.  Her GI doctor and nutritionist decided that it would be best to have her head measured.  I rushed her to the local clinic at closing time, had her head measured and sent off to the Children's Hospital in Madison.  By 9 am the following morning, they had reviewed it and called.  They wanted her there right away to have a brain scan done.  The scan showed that her shunt had indeed quit working.  She was scheduled for the surgery the following morning, July 30th.  It went well and we were able to come home the 31st.  On August 2nd, I went to work like any other Monday morning.  I had contractions all day but chalked it up to those Braxton Hicks.  I had a regular 34 week OB appointment at 3:30 pm.  I got in the car and started to the clinic, which takes 35 minutes to get there, when those contractions started to hurt a little.  I told the nurse when I got there and got this look like "you are not in labor!"   I was doing a doctor rotation so a new doctor whom I had never seen before came in with her head in my file.  She looked at me and said "oh my gosh, ok...how long have you been shaking?"  She called an ambulance to take me to the hospital since I was no longer in any shape to drive and I was 3 cm and 90%.  Those EMTs, both men, wheeled me out of the clinic on a stretcher through the OB waiting room.  I probably scared the daylights out of those waiting expectant moms.  I was 5 cm and completely effaced when I got to the hospital.  Weston Robert was born 5 weeks, 3 days early.  He started grunting with each breath and had some trouble catching on to eating.  He spent 19 days in the NICU.  5 days after bringing Weston home, I noticed that an incision from Rylee's July surgery was broke open and there was a black something inside of it.  The next day, I took her to see Dr. Alison who was extremely upset by this, got us an appointment at the children's hospital for the following morning and instructed us to go to the UW ER if if broke open again, bled or could see the black "thing".  As of Monday, we found out that Rylee's shunt was exposed and she needed an entirely new shunt.  Dr. Bragg (the new Neurosurgeon) tapped her shunt for infection and instructed us to be back in the morning for surgery.  I was extremely nervous that morning.  They took her back and it seemed like forever before we got an update.  Dr. Bragg came in and said that she had just closed Rylee up and getting ready to clean her off, when the phone rang.  It was the lab, saying that Rylee's culture from the shunt tapping the afternoon before had grown out for positive strep coag.  So Dr. Bragg, went back into surgery to remove the shunt, place a PICC line, and place an EVD.  Rylee was in the Pediatric ICU for 8 days before undergoing another surgery to put a new shunt in.   Today, Rylee and Weston are healthy and happy.  Weston has completely caught up with his age.  Rylee is lagging about 12 months behind.  They wear the same sized clothes and diapers.  It's like having twins.  The last 22 months have been hard.  As a mother, my heart has broke many times watching my child go through test after test.  Whenever I have a "down" day, I think about her toothy smile, infectious laugh and the mere fact, that truly against all odds, she is here with us.  We don't know what her life expectancy is but she will have the best life we can give her.

Too many babies are born early.  The cause of Rylee's prematurity is unknown.  There are problems with her heart, lungs, kidneys, intestines, brain, feet, hands...could these have been prevented if she was a full term baby?  We'll never know.  Give a baby a chance, donate to the March of Dimes.  Do it for Rylee!

I made a quick little video of Rylee's last 22 months.  Enjoy!

Make an on-line slide show at www.OneTrueMedia.com