Happy Birthday Rylee!

At this very moment, 1:55 am, 365 days ago, Rylee Marie was born weighing 2 lbs, 15 oz and 15 inches long.  Today, she is 13 lbs and 25 inches long. 

Rylee has spent 23.5% of her 1 year of life in the hospital. And 49.8% or 182 days on oxygen to assist her breathing.

Throughout the past year, Rylee has been tested for Cystic Fibrosis, negative. She has been diagnosed with ROP, Chronic Lung Disease, Hydrocephalus and Chromosome 6 deletion q25.1-25.2. 

Today, Rylee is full of smiles.  Her personality is shining bright.

She loves her Jumperoo.

She loves her brother.

She has just recently taken to a pacifier.

She goes to bed at 7 pm and gets up at 5 am to eat and sometimes falls back to sleep afterwards.

She loves dolls and girly stuff.

Anything she can wrap her fingers around go in her mouth.

She can sometimes roll, sometimes not.  She can not yet sit up unsupported but can do pretty well with minimal support.  She is seen by a speech therapist and occupational therapist once a month and a physical therapist twice a month. 

She has 1 tooth.  She is eating single grain organic cereal.  We have tried to feed her organic sweet peas but she hates them.  Maybe we'll try in a couple weeks again.

Happy Birthday Rylee. 

Love- Mommy and Daddy