Monday, May 23, 2011
Rob
So I know that no one probably reads this blog anymore because let's face it, I am too dang busy! I promise that I will TRY to write more often! So life around here the last 2 and half years, hasn't been very good. It's been a lot to handle and I think that we have done the best we can with what we've had thrown at us. And sometimes, I literally feel like I have been thrown under a bus. We planned on things going smoothly with Rylee and staying away from AFCH for 6 months. That's been our goal. That was our plan. I was raised and lived by a plan. I heard repeatedly throughout my youth, "plans DON'T change!" The day I had Weston, I completely ignored my body SCREAMING at me that I was in labor and my coworker said, "I think you're in labor" to which I replied, it's to early, it's not the plan. The last thing she said to me before I left that day was "just tell God your plan." On the contrary of what my youth was centered around, plans DO change. I didn't plan for my life to be like it is today. Quite the opposite actually. I just celebrated my 10th year at Clare Bank. Very awesome. My boss is Deb. She has been my boss for the last 10 years. A few years ago she became my Dad's girlfriend. A year after they had been dating, I had to call my boss Deb and tell her that an employee at one of branch bank's stole. She didn't question me, she handled it. 4 days later, my dad's girlfriend Deb got a call at work (while she was being my boss Deb) that her son, Rob, fell. He feel off the roof of a 2 story home that the construction company he worked for was building. 4 days earlier, I got a huge life changing lesson! 4 days after that, Rob had a life change. His spinal cord was completely severed. He was paralyzed from the belly button down. On the days that I think my life sucks, I think about Rob. He took the news of life in a wheelchair like it was no big deal. Just a bump in the road! Now, jump forward to today. Last September, my dad's girlfriend Deb became my dad's wife Deb. That night I watch Deb sit on Rob's lap and dance. In July, it will be 3 years since his accident. A couple weeks ago, he reached his 100th consecutive day in the hospital. He's battling the mother of all pressure sores right now. He has been dealing with all of this since Thanksgiving, I believe! I am not writing this post for your sympathy towards him because I am sure he wouldn't want it. He's incredible by the way. Rob is one of those people you HAVE to meet in your life. Like write Rob Weigel down on your bucket list! He really is that AWESOME! He's at the St. Mary's hospital in Rochester, MN. Just down the street from the Mayo Clinic. It's the hospital that presidents go to. It's that awesome! My stepmom Deb being my boss Deb today, told me about a paralyzed man who had an electrical device implanted in his spine and now he can move his toes. And get this, his name is Rob. Coincidence? I think NOT! Maybe it's fate that it worked for that Rob now make it work for our Rob. He has such a long road ahead of him already. He's going to have surgery again, hopefully soon that will be broke up in 3 parts, it's that huge to remove the rods in his spine, fix what's going on in there and piece him back together. Rob may most likely never walk again but that doesn't mean that we stop praying.
Sunday, May 15, 2011
May flowers
We misplaced our cord to upload photos from our camera so I don't have any pics. We have some good ones that I love too. Soon I promise!
What happened to this month? What happened to April? We spent a lot of April at the hospital or doctors office. Hopefully that won't be the case for a while!
Here's some updates on what's been happening with us the last monthish?!
ME:
I have been having terrible migraines AGAIN!! It most like stress contributing to these. Dr. C says I can't blame them solely on stress but it definitely contributes. Migraines, in case you have never had the chance to experience one, is an out of body experience! They're that bad. So bad you wish yourself out of your body. I have had plenty of them before but they intensified lately and started playing with my vision and stomach. So I now have some meds and if those don't work than we'll take a different approach. They've been running my life lately so that is all that I have.
Kristopher:
He's even less exciting than I am. Other than a little case of the flu he's been just doing the same old same old. Which will stay that way as he didn't get the job at John Deere. He's pretty bummed about it but he also has a stable job now and John Deere has a reputation for hiring a bunch of people and then laying them off shortly after. So it just wasn't meant to be.
Weston aka "Weston Bobby":
He's growing into quite the little man. He worms his way into mischief. Literally, he does the worm. He can't quite get the crawling concept down and he completely content with the worm. He seen Dr. C on Thursday as well and got a perfect report. He is 18 pounds, 14 oz, 28.25 inches long, and has a 17" head circumference. His head circumference and weight are in the 25th percentile while his length is in the 50th percentile. He currently wears size 3 diapers and size 6 to 9 month clothes. He can't quite sit by himself yet. We are to push him into that and taking steps while we hold him up. He eats like a horse. He loves his milk but also likes his stage 3 baby foods and we have even given him table foods. He absolutely adores his big brother and big sister. Troy is about the only one who can get him to laugh out loud by doing some of the weirdest things. Overall, he's a happy, healthy 9 month old little boy.
Rylee:
She may have had a rough start in April but she's been doing fairly well since. She went almost a month without a seizure. Then Thursday morning she had one or so we think. We're not really sure, which is common. She had a sleep study on May 1st. The nurse that called me with the results said "Rylee failed with flying colors." We expected her to say that. Now she has to go to the ENT doctor for a possible tonsillectomy with adenoids. Then either after that appointment or if surgery is needed, than after surgery, she will have to go back to Pulmonary. Dr. S said that he thought he tonsils looked fine. Dr. C thinks that removing her adenoids will be good since she is constantly congested and has a running nose. Either way I think that CPAP is inevitable. She will meet with the ENT doctor on May 24th at the children's hospital. I thought we were trying to not go there so much, apparently NOT yet. On the good side, she is walking a lot more lately. She is also talking more. Her new words are "Carmen", "Jalyn", "OY (Troy)" "JVKJEIOAJH Bobby (Weston Bobby)" "ME" "MOM" or "MA" and she will repeat whatever we say to her. She is becoming increasingly interested in potty things.
Troy:
He says some of the funniest things! He is constantly asking us "What does that word mean?" He always needs to figure out everything. He also ALWAYS disagrees and argues with us. If we tell him to do something his reply is always "UH HUH" which his little sister has started mocking. For example, today we were talking about eye color. We told him he has brown eyes and Rylee has blue eyes. He replied "UH HUH, I don't want brown eyes, I want blue eyes." Kris was naming off all the awesome people who have brown eyes "Dad has brown eyes, Weston has brown eyes, Grandma has brown eyes." Now for the rest of the day Troy has been talking about going to Grandma's house to see her brown eyes. I even told him, no we're not going to Grandma's today and he said "DON'T SAY THAT WORD MOM!" We found out how much we have to watch what we say. The other day in the car he said clear as day "What the hell is that robot doing?" Opps! Trying to break that one. After a stern scolding, he hasn't said it since. He wants to go to school and tells me repeatedly so. He is such a great little man!
What happened to this month? What happened to April? We spent a lot of April at the hospital or doctors office. Hopefully that won't be the case for a while!
Here's some updates on what's been happening with us the last monthish?!
ME:
I have been having terrible migraines AGAIN!! It most like stress contributing to these. Dr. C says I can't blame them solely on stress but it definitely contributes. Migraines, in case you have never had the chance to experience one, is an out of body experience! They're that bad. So bad you wish yourself out of your body. I have had plenty of them before but they intensified lately and started playing with my vision and stomach. So I now have some meds and if those don't work than we'll take a different approach. They've been running my life lately so that is all that I have.
Kristopher:
He's even less exciting than I am. Other than a little case of the flu he's been just doing the same old same old. Which will stay that way as he didn't get the job at John Deere. He's pretty bummed about it but he also has a stable job now and John Deere has a reputation for hiring a bunch of people and then laying them off shortly after. So it just wasn't meant to be.
Weston aka "Weston Bobby":
He's growing into quite the little man. He worms his way into mischief. Literally, he does the worm. He can't quite get the crawling concept down and he completely content with the worm. He seen Dr. C on Thursday as well and got a perfect report. He is 18 pounds, 14 oz, 28.25 inches long, and has a 17" head circumference. His head circumference and weight are in the 25th percentile while his length is in the 50th percentile. He currently wears size 3 diapers and size 6 to 9 month clothes. He can't quite sit by himself yet. We are to push him into that and taking steps while we hold him up. He eats like a horse. He loves his milk but also likes his stage 3 baby foods and we have even given him table foods. He absolutely adores his big brother and big sister. Troy is about the only one who can get him to laugh out loud by doing some of the weirdest things. Overall, he's a happy, healthy 9 month old little boy.
Rylee:
She may have had a rough start in April but she's been doing fairly well since. She went almost a month without a seizure. Then Thursday morning she had one or so we think. We're not really sure, which is common. She had a sleep study on May 1st. The nurse that called me with the results said "Rylee failed with flying colors." We expected her to say that. Now she has to go to the ENT doctor for a possible tonsillectomy with adenoids. Then either after that appointment or if surgery is needed, than after surgery, she will have to go back to Pulmonary. Dr. S said that he thought he tonsils looked fine. Dr. C thinks that removing her adenoids will be good since she is constantly congested and has a running nose. Either way I think that CPAP is inevitable. She will meet with the ENT doctor on May 24th at the children's hospital. I thought we were trying to not go there so much, apparently NOT yet. On the good side, she is walking a lot more lately. She is also talking more. Her new words are "Carmen", "Jalyn", "OY (Troy)" "JVKJEIOAJH Bobby (Weston Bobby)" "ME" "MOM" or "MA" and she will repeat whatever we say to her. She is becoming increasingly interested in potty things.
Troy:
He says some of the funniest things! He is constantly asking us "What does that word mean?" He always needs to figure out everything. He also ALWAYS disagrees and argues with us. If we tell him to do something his reply is always "UH HUH" which his little sister has started mocking. For example, today we were talking about eye color. We told him he has brown eyes and Rylee has blue eyes. He replied "UH HUH, I don't want brown eyes, I want blue eyes." Kris was naming off all the awesome people who have brown eyes "Dad has brown eyes, Weston has brown eyes, Grandma has brown eyes." Now for the rest of the day Troy has been talking about going to Grandma's house to see her brown eyes. I even told him, no we're not going to Grandma's today and he said "DON'T SAY THAT WORD MOM!" We found out how much we have to watch what we say. The other day in the car he said clear as day "What the hell is that robot doing?" Opps! Trying to break that one. After a stern scolding, he hasn't said it since. He wants to go to school and tells me repeatedly so. He is such a great little man!
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