Tuesday, April 5 - ER trip to UW for possible shunt malfunction and possible seizures that turned into an overnight stay for observation. Conclusion: Not much but high white blood cells.
Friday, April 8 - Rylee showed Dr. Connolly her sick side, didn't even give him a smile. I think it scared the dickens out of him. He kept saying, "I'm sorry, something is wrong but I don't know what."
Tuesday, April 12 - Rylee had a seizure at home.
Wednesday, April 13 - Rylee's neurosurgeon wanted to her in Madison, right away. So we packed up the car and rushed up there. We only made it to Mt. Horeb before the car DIED! It quit. NO JOKE! After a tow and a ride to the Children's hospital from my godsend, Aunt Lisa, we made it, almost 2 hours late! Oh well.
Friday, April 15 - After 2 days, 36 hours on a video EEG, we got the word we could go home. I washed Rylee's hair and while I was cleaning up the shower, she threw my cell phone in it and killed it. Kris and the boys, who had been bounced between Grandma and Grandpa Klauer and daddy, came to get us. Since Wednesday, Weston had been very irritable, crabby and had the start of a rash. Maybe he just missed his mommy right? NOPE!!
Saturday, April 16 - Daddy took a test at John Deere, hoping for a new job, great benefits and FIRST shift!! (PRAY FOR THIS!!) When daddy got home, I took Weston to Urgent Care. The doctor walked in and looked at Weston's face and said "WOW, I haven't seen this in a VERY LONG TIME! I think he might have measles." After a look in his mouth and not finding any Koplik's spot, he said it's a viral rash and double ear infection and sent us home with an antibiotic.
Monday, April 18 - Weston's rash changed in the way that it looked. The measles thing didn't sit well with me, so I took him to the clinic. Dr. C was out for the day, Dr. White was booked, all the women physicians are pregnant so we got newbie Dr. Tuthill. He looked at him, grabbed a mask and a masked Dr. White who said "Lots of viruses mimic the measles, but he is showing almost every sign of the actual measles. We have to treat with the Measles." So Grant County was called and Lafayette County Health Department has checked in with us twice.
I'll be honest, I have had a few pity parties but not to often. I have before asked why all of this happens to my child or to me. But seriously, the 6 days have been loaded of bad luck or whatever you want to call this. And I find myself asking, WHY US? Why does Rylee have to have some many things stacked against and now seizures too...WHY? Why does Weston, a baby, have to have Measles....WHY? Why does Troy have to be bounced around all the time that he is constantly telling me he misses me and never wants to leave home anymore...WHY? Why do Kris and I have to sit back and watch our children go through test after test and shed tear after tear...WHY?
I know life is not fair but this is just NOT fair for any of us. I don't understand what is going on here. I don't know what we ever did to deserve this stuff that has been thrown at us. Until today, I have handled all of this lately. With as much ease as I could. I haven't shed a tear...Until today. Today, I cried my whole way home. Alone in the car, I cried. I cried for my kids and husband. I cried about our life because we just can't catch a break. I feel as though I've reached the top of what I am capable of handling but I know through all of this that it could be a lot worse. And for that, I am lucky. I am lucky to have a great husband and father of my children. And I am really lucky to have my children. I am lucky to have Rylee today. I am lucky to have Troy to put humor into our day. I am lucky to get those looks from Weston like he absolutely adores me. I may have a whole heck of alot of bad luck but I still my family and for that I am grateful.
