3 years ago...

my life changed forever!  Troy Thomas Klauer entered this world.  Happy 3rd Birthday Troy.  I love you more than you'll ever know.

Oh, what to do...

We took Rylee to her Growth Hormone testing. Her blood pressure dropped to 50s over 20s. That’s the lowest it got, which was low enough! It took about 4 hours. She was pretty much zonked through the entire thing. On Tuesday, after much badgering, I got the test results. She passed. This was a test that we desperately wanted her to fail. I thought, prayed rather, that this Growth Hormone deficiency was going to be it. It was going to be the diagnosis that we had been waiting for. But she passed meaning that’s not it. To say that I was bummed to highest level on Tuesday is an understatement. So it’s back to the drawing board. We had to take Wes to see Dr. Ashley on Wednesday and she pulled Dr. Connolly in to look into his ears. We discussed the results a little while he was in with us. He thinks that she may quite possibly have some form of dwarfism. It could possibly be the Chromosome deletion. It could be a lot of things. So we discuss this more at length on Thursday when we take Wes back again for his 4 month well child appointment. Diane Eastman, Rylee’s nurse practitioner from UIHC, called me yesterday. She desperately wants Rylee in to have her heart and kidneys looked at. I was trying to steer away from Iowa City because of the drive but I guess it’s not much longer than going to Madison from our house. Rylee’s innocent heart murmur may not be so innocent after all. Her enlarged kidneys could be the problem. I hope going down there we can figure out what is causing this “failure to thrive”. She is officially considered a “failure to thrive” child because her growth is less than 2 lbs and 2 inches of growth in 1 year. In the last 12 months, she has only gained 10 oz and grew 1 5/8 inches. I want to discuss the possibility of the Mayo Clinic with Dr. Connolly. I think it is time to quit messing around and just head up there. If he doesn’t think so, I do. And I am mom so I win! I am at my wits end really.  I just don't know what to do anymore.

Runny noses is the race around our house. We can’t get Wes and Rylee’s to quit! Poor Wes had an ear infection in November and again in the beginning of this month. This poor child has been following in his big brother’s footsteps, through and through. He has also developed a wheezy cough that Amoxicillin didn’t kick, neither did Omnicef so he has Prednisone to his regimen. He is taking Omnicef, Prednisone and Albuterol by nebulizer everyday. Hopefully, when we see Dr. Connolly next week, this is all cleared up.

Last Sunday night, Kristopher took Troy to see a Canadian Pacific train come stop in Dubuque. It was all lit up in lights and they had performers and music. He had a blast. The only downsides were that it was late, 9:30 pm, and bitterly cold out. They stayed for about a half hour and then came home. He was so excited to tell me about it. He even talked about it with his babysitter for a couple of days. He knew all the colors of the lights. He’s growing up before our eyes! He says some of the funniest things and we have the most interesting conversations. He’s hugely into trains and dinosaurs.

This weekend is a big one for us. Tomorrow my baby brother graduates from college and is having a little open house at my dad’s afterwards. I am excited to cheer him on. I have to pick his girlfriend up at 1 and we will take our seats (yes, there is assigned seating!). Do you all remember the scrawny little guy? Now he is a bulky, muscular, tall guy. He’s no longer my “little” brother…he’s my little but BIG brother! Congrats Scotty!

Next Monday, we are off to the GI doctor and Thursday to see Dr. Connolly. Eventually we will go a week with out a doctor visit…I hope!